I'm new to the list and wondered if anyone could help me with a little
information. I'm writing an educational booklet for parents of newborns
with Robin Syndrome.
Children with this condition are born with (usually) cleft palate and an
underdeveloped mandible, which results in a tongue that sits far back in
the upper airway. Airway problems vary depending on how developed the jaw
is. Children with the worst problems cannot lie on their backs at all
without airway obstruction.
We are including instructions for a modified type of CPR in the booklet, but
we had no research to base them on. They're drawn entirely from a CPR
instructor's spare time experimentation.
Does anyone know of any research on caring for Robin Syndrome infants who
need: CPR, artificial respiration, or removal of airway-obstructing foreign
bodies? Or, does anyone have any experience in managing Robin kids'
airways in the above situations?
For this publication, I can only write very basic BLS information, as I am
writing for parents rather than health care providers.
Thanks in advance for any help you can give me.
MERP, IU School of Medicine
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